A page designed for new parents.
Learn about the team concept and find a team and other resources in your area.
Will you be able to breastfeed your baby with cleft lip and/or palate?
Audiology, ENT, speech/language, genetics, secondary surgery and more. Access documents written by medical professionals.
AmeriFace (cleftAdvocate is a program of AmeriFace)
PO Box 751112
Las Vegas, NV 89136-1112
Phone: (888) 486-1209 (toll-free), Fax: (702) 341-5351
Our Pathfinder Partner Organizations include:
1504 East Franklin St., Suite 102
Chapel Hill, NC 27514-2820
Phone: (919) 933-9044
Fax: (919) 933-9604
13140 Coit Road, Suite 517
Dallas, TX 75240
Phone: (800) 535-3643 or (214) 570-9099
Stacy Keach, Honorary Chairman
CLEFTLINE: 1-800-24-CLEFT (24 hours, toll free)
Parent/patient feedback on various teams/physicians
P. O. Box 11082
Chattanooga, TN 37401
Phone: (800) 332-2373
258 Harvard St., # 367
Brookline, MA 02446
Phone: (617) 355-8299
P.O. Box 2038
New York, NY 10159-2038
Phone: (866) 823-8005
University of Michigan
School of Dentistry / Dentistry Library
1011 N. University
Ann Arbor, MI 48109-1078
PO Box 147
Pilot Grove, MO 65276
Phone: (660) 834-3406
410 E. Main Street
P.O. Box 114
Mascoutah, IL 62258–0114
Phone: (618) 566-2020
Fax: (618) 566-4718
P.O. Box 5398
Hemet, CA 92544
Phone: (951) 925-8800 or (888) 463-3543
Fax: (951) 925-0686
Snugglewraps and other cleft-related items
974 Harbortowne Road
James Island, SC 29412
Phone: (843) 762-6769
Fax: (866) 332-0628
5635 Peck Rd.
Arcadia, CA 91006-0020
Phone: 1-800-44-POSEY (447-6739)
Fax: 1-800-767-3933
Tapes for pre- and post-surgical taping and NAM use
Unilateral DynaCleft - $27 (Qty. 7/box)
Bilateral DynaCleft - $35 (Qty. 7/box)
Nasal Elevator - $48 (Qty. 7/box); $192 (Qty. 28/box)
(Nasal Elevator sold only w/equal purchase of DynaCleft)
Southmedic (Acquired Canica/DynaCleft in April 2015)
50 Alliance Blvd. Barrie
Ontario L4M 5K3
Phone: (705) 726-9383 or (800) 463-7146
JACo Enterprises
PO Box 22084
Phoenix AZ 85028
Phone: (602) 942-1191 or (800) 678-0078
Fax: (602) 482-2216
13297 Temple Blvd Bldg B
West Palm Beach, FL 33412
Phone: (888) 426-4327
New Danny Ties™ tracheostomy holder minimizes skin irritation, securely holds artificial airway for infant, pediatric and adult patients.
Also see Kids Retainers
88 Life Link Way
Bozeman, MT 59718
Phone: (800) 443-8620
Fax: (406) 587-4303
5431 Dellview Street
Chilliwack, BC, Canada V2R 3Y9
Phone: (604) 657-2951
Children's Medical Ventures (Dog and Duck)
Baby Planet Boutique (Horse, Duck, Frog)
Infant-positioning system for babies with reflux
or requiring post-op elevation.
P. O. Box 641117
Kenner, LA 70064
Phone: (800) 780-7479 or (504) 464-7479
Fax: (504) 464-7480
Facial and oral massager for children with oral defensiveness
1442A Walnut Street, #52
Berkeley, CA 94709
Phone: 1-877-428-1244 (toll free)
Cast, prosthesis, PICC line water protection
349 Military Cutoff Road
Wilmington, NC 28405
Phone: (910) 791-0009
Fax: (910) 791-4479
Toll Free: (888) 337-9776
Beyond Play
1442A Walnut Street #52
Berkeley, CA 94709
Phone: 1-877-428-1244 (8am-4pm, Pacific Time, M-F)
Fax: 1-877-218-8441 (toll free)
International Shrine Headquarters
2900 Rocky Point Dr.
Tampa, FL 33607-1460
Phone: (813) 281-0300
2011 Palomar Airport Rd, Suite 206
Carlsbad, CA 92011
Phone: (760) 944-7774
Toll-Free: (888) 551-1003
Fax: (760) 944-1729
P.O. Box 606
Bonita, CA 91908-0606
Phone: (619) 470-2885
Fax: (619) 267-4553
Healing the Children
National Office
P.O.Box 9065
Spokane,WA 99209-9065
Phone: (509) 327-4281
Fax: (509) 327-4284
4572 Turnberry Ct.
Plano, TX 75024
Phone: (972) 208-8813 or (972) 567-8191
Holly Stock
Founder & Managing Director
Funding for treatment of children with vascular malformations
338 West 3rd Ave.
Escondido, CA 92025
Phone: (760) 735-9065
Fax: (760) 735-2977
7777 Forest Lane, Suite C-621
P.O. Box 515838
Dallas, TX 75251-5838
Phone: (972) 566-6669
or (800) 533-3315
Fax: (972) 566-3850
Brookwood Medical Plaza, Suite 372
513 Brookwood Boulevard
Birmingham, AL 35209
Phone: (205) 879-6665
Fax: (205) 879-3873
4200 Park Blvd PMB 157
Oakland, CA 94602
Phone: (510) 273 2485
PO Box 1185
Double Bay, NSW 1360
Sydney, Australia
Phone: +61 (2) 9362 7480
Fax: +61 (2) 9328 6036
41 Madison Ave., 28th floor
New York, NY 10010
Phone: (800) 932-9541
or (212) 689-9199
Fax: (212) 689-9299
6435 Tidewater Drive
Norfolk, VA 23509
Phone: (757) 321-7645
Fax: (757) 321-7660
300-B Pioneer Way
Mountain View, CA 94041-1506
Phone: (650) 962-0123 or
1-888-INPLAST (1-888-467-5278)
Fax: (650) 962-1619
410 1st Ave. NW
Rochester, MN 55901
To request assistance: (877) 621-7177 or e-mail
2756 N. Green Valley Parkway #115
Green Valley, NV 89014-2120
Phone: (800) FLY-1711
Phone: (702) 261-0494
Fax: (702) 261-0497
(Formerly the National Patient Air Transport HELPLINE)
Lodging and support services
Hospitality Hotline (800) 542-9730
Daily 9 a.m. to 5 p.m. EST
Find a house using this on-line tool
Military Resource includes lodging and support services
(888) 294-8560
Check our state pages
From insure.com
For children with no health insurance who don't qualify for Medicaid. Some states also insure families. Links to programs also available on our state pages.
Check our state pages
QuickLinks
The Controversial Issue of Breastfeeding
Cleft-affected Infants by Jacalyn Hudson Miller
Downloadable Soon! A cleftAdvocate on-line exclusive!
Order on-line or call (800) 222-9123
Pricing as of December 2014 - $19.00/6 bottles, includes free shipping; Case of 72 nursers - $148.00, includes free shipping (Express shipping available for add'l cost)
Formerly known as the Haberman Feeder
ONLY replacement parts are available directly from Medela
Phone: (800) 435-8316
(See retail distributors below)
SpecialNeeds™ and Mini-SpecialNeeds™ Feeders
and Breast Pumps)
Medela International Distributors (Outside USA)
Specialty feeding supplies, including Pigeon feeders
191 Wyngate Drive
Monroeville, PA 15146
To place an order: (888) 766-8443
Phone: (800) 345-6443
Outside the USA: (724) 387-4000
Pigeon Bottles and Nipples >>>
Medela SpecialNeeds™ Feeders >>>
Available at your local store. Parents report using this bottle with the Pigeon nipple.
Parents report using this bottle with the Pigeon nipple
(Dr. Brown's Bottles are also now available at Walmart)
Handi-Craft Company
4433 Fyler Avenue
St. Louis, Missouri 63116
Phone: 1-800-778-9001
4350 Steeles Avenue East, Unit A13
Box 98 Markham, Ontario Canada L3R 9V4
To order, call (866) 886-3811 or (fax) 1-866-886-3812
Local : (905)-513-7265, Fax: (905)-513-7268
Ross Educational Services Department
Cleft palate nurser, Item #00875x
Parents report using this bottle with Ross Preemie Nipple
Order direct from Ross, as this item is noted on their website. Call toll-free (800) 986-8503 Monday-Friday, 8:30 AM - 5:00 PM, EST. Price as of September 2005 is $1.75 per bottle, a minimum order of 3 bottles required.
Similac® Premature Nipple & Ring (formerly Ross)
Order at www.rosstore.com or call (800) 258-7677 to place an order. Pricing as of April 2014 - $48.99/case of 48
Similac® Orthodontic Nipple and Ring (formerly Ross)
Order at www.rosstore.com or call
Ross at 1-800- FORMULA (1-800-367-6852)
Pricing as of April 2014 - $54.25/case of 50
Includes shipping
For post-operative feeding, no sucking required
Com-Pac International
800 West Industrial Park Road
Carbondale, Illinois 62901
Phone: (800) 824-0817
TenderCare™ post-op feeder
974 Harbortowne Road
James Island, SC 29412
Phone: (843) 762-6769
Fax: (866) 332-0628
130 N. Public Street
Elmwood, Wisconsin 54740
United States
Phone: (800) 310-5817
Fax: (715) 639-2739
SpecialNeeds™ and Mini-SpecialNeeds™ Feeders/Parts
1 Sherwood Dr
Shalimar, FL, 32579
Phone: Toll Free (877) 463-3352
From Northwest Florida, call (850) 651-4500
Stocks SpecialNeeds™ and Mini-SpecialNeeds™ Feeders
Phone: (256) 528-7953
Order on-line or call 1-800-BABY123, Mon. - Fri. 7 AM to
7 PM Central Time or Sat. 8 AM to 4:30 PM Central Time
Order on-line or call (800) 551-5838, Monday through Friday, 8:30 AM to 6:00 PM Eastern Time
Taste-free calorie booster; consult your physician.
Axcan Pharma Inc. - United States
22 Inverness Center Parkway
Birmingham, AL 35242 USA
Phone: (205) 991-8085
Fax: (205) 991-8176
Neutral flavor calorie booster; consult your physician.
Nutricia North America
P.O. Box 117
Gaithersburg, MD 20884
Phone: (800) 365-7354
Instant food thickener; consult your physician.
Phone: (800) 333-0003
Also available at Walgreens and CVS Pharmacies
Check our state pages for links to your county office. WIC provides supplemental foods (including formula)
and nutrition education.
Information on breastfeeding infants with clefts
This website is driven by the needs of our readers. If you know of of product or service our visitors should know about, please contact us.
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This cleftAdvocate page was last updated May 5, 2015
cleftAdvocate
a program of ameriface
